The Spookiest Myths About Desmoid Tumors

In honor of Halloween, I wanted to address some of the scary myths we face as Desmoid Fibromatosis patients. These myths come from misinformation and lack of knowledge on the topic due to how rare of a disease it is. They can really "haunt" a patient who is living through them. Surgery to Remove the… Continue reading The Spookiest Myths About Desmoid Tumors

Let’s Talk: Motivation vs. Commitment

I am in the 6th month of my diagnosis and more importantly month 6th of healing myself with a major lifestyle change (time flies when you're having fun). For 6th months I have flipped the script on what I knew for 29 years of my life and unlearned a lot of which I was taught… Continue reading Let’s Talk: Motivation vs. Commitment

Feel It Completely and Let It Go

For a while there, I had really mastered the art of talking to myself in a positive way. I was able to calm any negative thoughts, calm any anger I was feeling or ill feelings and I was even able to constantly look on the bright side of this tumor. Lately, it's been a little… Continue reading Feel It Completely and Let It Go

I’m Glad It’s Me

I think about this often. What if this whole situation didn't happen to me and instead of being the patient, my loved one was the patient and I was caring for them. Not that I need much "caring" for. Maybe emotionally more than anything but lets be honest, I needed that before my diagnosis too… Continue reading I’m Glad It’s Me

Now Back To Your Normally Scheduled Blogging …

Well, hello strangers! I have to admit, I have been TERRIBLE at keeping up with my blog this Summer. Between the gorgeous weather, the 4th of July holiday and my impromptu vacation, I have completely let my blog fall by the wayside and that's not cool. Not only do I LOVE sharing and learning on… Continue reading Now Back To Your Normally Scheduled Blogging …

Tips For Making a Lifestyle Change

It's not easy when you suddenly change up the way you have been doing things your entire life. Since I was young I always ate meats and consumed dairies. I never really lived an organic lifestyle or put thought into what I was putting on or in my body. Recently, having changed my entire lifestyle,… Continue reading Tips For Making a Lifestyle Change

I SHRUNK MY TUMOR.

I wasn't super nervous for my follow up appointment ... until the night before. The whole time leading up to this visit at Dana Farber I was calm, cool and collected. The MRI really freaked me out the most but the results, at that time, weren't bothersome to me. Then, the night before the appointment… Continue reading I SHRUNK MY TUMOR.

Product Review: Myro Plant Based Deodorant

It's so important to be aware of the ingredients in our products. Especially when we use them frequently. For years now, I've been hearing about how bad deodorant can be for women and how its key ingredient, aluminum, has been known to cause breast cancer. As I've explained, shamefully, in the past, I always heard… Continue reading Product Review: Myro Plant Based Deodorant

MRI’s: What to Expect

I had my follow up MRI last Friday! I say it excitedly because I am glad it's O V E R. The very first time my PCP told me I needed and MRI I immediately panicked thinking about my claustrophobia. I hate small, confined places. Knowing I can't get out of a small space can… Continue reading MRI’s: What to Expect