My Last MRI of 2019

I can't believe I am nearing my last MRI of the year. I am so happy this year is almost behind me and I am going into the new year hopeful. Mostly hopeful that my regular 3 month MRI and doctor visits will be deduced to every 6 months. I was thinking about how far… Continue reading My Last MRI of 2019

Trusting the Universe is Scary but Necessary

I am completely a believer that "all things happen for a reason." If we dig hard enough, in even the most inconvenient or upsetting situations, we can find a reason or a meaning for why things happen to us the way they do. With that, I also completely trust the universe. I know, that no… Continue reading Trusting the Universe is Scary but Necessary

The Spookiest Myths About Desmoid Tumors

In honor of Halloween, I wanted to address some of the scary myths we face as Desmoid Fibromatosis patients. These myths come from misinformation and lack of knowledge on the topic due to how rare of a disease it is. They can really "haunt" a patient who is living through them. Surgery to Remove the… Continue reading The Spookiest Myths About Desmoid Tumors

Genetic Testing: Should I or Shouldn’t I?

spo·rad·ic /spəˈradik/ adjective occurring at irregular intervals or only in a few places; scattered or isolated. "sporadic fighting broke out" For as long as I've been diagnosed, I've been clinging to the word sporadic. When I received a diagnosis, a rare diagnosis, none the less, it kind of knocked me off my feet, I am a… Continue reading Genetic Testing: Should I or Shouldn’t I?