I am so sorry to have gone MIA. I definitely miss writing my personal blog and documenting my Desmoid journey. I'm not going to lie though, I was not so good at juggling all the things I had to juggle this holiday season. Between all the celebrations, my appointments, no days off from work, seeing… Continue reading Where the Heck Have I Been?
I can't believe I am nearing my last MRI of the year. I am so happy this year is almost behind me and I am going into the new year hopeful. Mostly hopeful that my regular 3 month MRI and doctor visits will be deduced to every 6 months. I was thinking about how far… Continue reading My Last MRI of 2019
You don't usually hear the word thankful and Desmoid Tumor in the same sentence. Because of the holiday, I decided to switch that up. There are plenty reasons why I could dislike my Desmoid but: Thanks for reminding me, girl. Here are 5 things things my tumor has made me thankful for:My Support Group -… Continue reading 5 Things My Desmoid Tumor Made me Thankful For
spo·rad·ic /spəˈradik/ adjective occurring at irregular intervals or only in a few places; scattered or isolated. "sporadic fighting broke out" For as long as I've been diagnosed, I've been clinging to the word sporadic. When I received a diagnosis, a rare diagnosis, none the less, it kind of knocked me off my feet, I am a… Continue reading Genetic Testing: Should I or Shouldn’t I?
As I anxiously sat in the waiting room at Dana Farber with my parents and husband last week, my husband was talking to us a mile a minute. If you know my husband, this isn't a rarity, but this was on o v e r d r i v e. It was making me more… Continue reading I Interviewed My Husband
My whole life I have been a ball of stress. I always tend to think of the worst possible outcome in any situation and harp on that bad outcome, in my head, until it becomes larger than life. Because I've always taken things on wholeheartedly this way, I know stress was a major factor in… Continue reading Hot Mess Express