Getting My Mind Right & a Drive By Shower

For as long as I can remember giving birth has been one of my greatest fears. Probably since the day I realized how babies actually come into this world, I've been petrified of the day I would give birth. Over the years I've watched (not literally) my powerhouse female family and friends give birth to… Continue reading Getting My Mind Right & a Drive By Shower

New Year, Same Mission

I can't believe we are halfway though the first month of the new year! Before we know it we are going to be getting ready to celebrate 2021. Time really does fly. My coworker and I were talking about it and its been about 13 years since I graduated high school. 13 years? WHAT?! I… Continue reading New Year, Same Mission

Where the Heck Have I Been?

I am so sorry to have gone MIA. I definitely miss writing my personal blog and documenting my Desmoid journey. I'm not going to lie though, I was not so good at juggling all the things I had to juggle this holiday season. Between all the celebrations, my appointments, no days off from work, seeing… Continue reading Where the Heck Have I Been?

My Last MRI of 2019

I can't believe I am nearing my last MRI of the year. I am so happy this year is almost behind me and I am going into the new year hopeful. Mostly hopeful that my regular 3 month MRI and doctor visits will be deduced to every 6 months. I was thinking about how far… Continue reading My Last MRI of 2019

5 Things My Desmoid Tumor Made me Thankful For

You don't usually hear the word thankful and Desmoid Tumor in the same sentence. Because of the holiday, I decided to switch that up. There are plenty reasons why I could dislike my Desmoid but: Thanks for reminding me, girl. Here are 5 things things my tumor has made me thankful for:My Support Group -… Continue reading 5 Things My Desmoid Tumor Made me Thankful For

The Art of Letting Go

I've never been good at letting go of things. I don't mean silly grudges or gripes. I always have an easy time of letting those go. I mean tangible things. Things that are comfortable to me. Things that I adore and hold meaning.  I'll never be the person that hops on a plane and starts… Continue reading The Art of Letting Go

The Spookiest Myths About Desmoid Tumors

In honor of Halloween, I wanted to address some of the scary myths we face as Desmoid Fibromatosis patients. These myths come from misinformation and lack of knowledge on the topic due to how rare of a disease it is. They can really "haunt" a patient who is living through them. Surgery to Remove the… Continue reading The Spookiest Myths About Desmoid Tumors