You don't usually hear the word thankful and Desmoid Tumor in the same sentence. Because of the holiday, I decided to switch that up. There are plenty reasons why I could dislike my Desmoid but: Thanks for reminding me, girl. Here are 5 things things my tumor has made me thankful for:My Support Group -… Continue reading 5 Things My Desmoid Tumor Made me Thankful For
In honor of Halloween, I wanted to address some of the scary myths we face as Desmoid Fibromatosis patients. These myths come from misinformation and lack of knowledge on the topic due to how rare of a disease it is. They can really "haunt" a patient who is living through them. Surgery to Remove the… Continue reading The Spookiest Myths About Desmoid Tumors
The other day, as I got my dogs rain coat on him, it dawned on me: "I am absolutely crazy." Not that me getting my dogs raincoat on was the first time I ever noticed it, but realizing your dog has a raincoat when you yourself do not, really gets you thinking. I would literally… Continue reading What Being a Dog Mom is Really Like
spo·rad·ic /spəˈradik/ adjective occurring at irregular intervals or only in a few places; scattered or isolated. "sporadic fighting broke out" For as long as I've been diagnosed, I've been clinging to the word sporadic. When I received a diagnosis, a rare diagnosis, none the less, it kind of knocked me off my feet, I am a… Continue reading Genetic Testing: Should I or Shouldn’t I?
There was no greater feeling in the world than hearing my tumor was benign. Make no mistake however, these monsters can be invasive, grow aggressively, damaging to vital organs and in some cases, have caused fatalities. I feel like I say this all the time, but I am very lucky that my tumor is where… Continue reading What it’s Like Walking Into a Cancer Center as a Patient
I am in the 6th month of my diagnosis and more importantly month 6th of healing myself with a major lifestyle change (time flies when you're having fun). For 6th months I have flipped the script on what I knew for 29 years of my life and unlearned a lot of which I was taught… Continue reading Let’s Talk: Motivation vs. Commitment
September is Desmoid Tumor Awareness Month. Awareness of any disease is so important. Awareness brings attention which brings medical research and funding and hopefully will lead to more treatment options or even dare I say .. a CURE. I made a promise to myself that I would make my blog public knowledge on my personal… Continue reading To Share or Not to Share ..
I'm the type of person who truly considers over sharing a terrible trait. I've mentioned it in my past blog about social media, how it's so strange to me that we post so much of our real lives online and let strangers in on our daily routines, celebrations etc. yet won't even say hello to… Continue reading Why Did I Start this Blog?
Since the beginning of my diagnosis I've been hearing how important it is to advocate for yourself with your medical professionals. I feel sometimes, we put so much trust in them, that whatever they say goes. I have not always been the best advocate for myself. Sometimes, I leave situations thinking "I should have spoken… Continue reading Advocate for Yourself, It’s Important