A Very Covid Christmas

Is it just me, or does this year's holiday season seem … lame? I know it's because we are going through a pandemic, but after Thanksgiving felt underwhelming, I'm determined to make Christmas feel better. Here are some ways we can all have a safe, feel-good Christmas season during Covid. Drive-Thru Lights Gillette Stadium in… Continue reading A Very Covid Christmas

Why Things Look a Little Different

If you've been here since the beginning of my page and blog, you may have noticed things look a little different. I hate change. I am a person who seeks comfort, and once I've found it, I stay put. But to be honest, things have changed with my tumor so, it's time this space follows… Continue reading Why Things Look a Little Different

The Trenches of Parenthood

Wow. I cannot even say how good it feels to be back at my lap top writing. I'm not sure if it's writing that is making me feel so good, or, being able to finally balance an infant to the point where I have a few moments to do something for myself that is beyond… Continue reading The Trenches of Parenthood

Getting My Mind Right & a Drive By Shower

For as long as I can remember giving birth has been one of my greatest fears. Probably since the day I realized how babies actually come into this world, I've been petrified of the day I would give birth. Over the years I've watched (not literally) my powerhouse female family and friends give birth to… Continue reading Getting My Mind Right & a Drive By Shower

OH. BABY.

Wow. It has been quite a while. I know I usually give some schpeal about how busy I've been and how I can't believe I have let this much time pass without writing but truthfully, I allowed it. Genuinely. I haven't really been ready or motivated to blog recently. There is so much going on… Continue reading OH. BABY.

New Year, Same Mission

I can't believe we are halfway though the first month of the new year! Before we know it we are going to be getting ready to celebrate 2021. Time really does fly. My coworker and I were talking about it and its been about 13 years since I graduated high school. 13 years? WHAT?! I… Continue reading New Year, Same Mission

Where the Heck Have I Been?

I am so sorry to have gone MIA. I definitely miss writing my personal blog and documenting my Desmoid journey. I'm not going to lie though, I was not so good at juggling all the things I had to juggle this holiday season. Between all the celebrations, my appointments, no days off from work, seeing… Continue reading Where the Heck Have I Been?

The Spookiest Myths About Desmoid Tumors

In honor of Halloween, I wanted to address some of the scary myths we face as Desmoid Fibromatosis patients. These myths come from misinformation and lack of knowledge on the topic due to how rare of a disease it is. They can really "haunt" a patient who is living through them. Surgery to Remove the… Continue reading The Spookiest Myths About Desmoid Tumors

Genetic Testing: Should I or Shouldn’t I?

spo·rad·ic /spəˈradik/ adjective occurring at irregular intervals or only in a few places; scattered or isolated. "sporadic fighting broke out" For as long as I've been diagnosed, I've been clinging to the word sporadic. When I received a diagnosis, a rare diagnosis, none the less, it kind of knocked me off my feet, I am a… Continue reading Genetic Testing: Should I or Shouldn’t I?