In honor of Halloween, I wanted to address some of the scary myths we face as Desmoid Fibromatosis patients. These myths come from misinformation and lack of knowledge on the topic due to how rare of a disease it is. They can really "haunt" a patient who is living through them. Surgery to Remove the… Continue reading The Spookiest Myths About Desmoid Tumors
I am in the 6th month of my diagnosis and more importantly month 6th of healing myself with a major lifestyle change (time flies when you're having fun). For 6th months I have flipped the script on what I knew for 29 years of my life and unlearned a lot of which I was taught… Continue reading Let’s Talk: Motivation vs. Commitment
September is Desmoid Tumor Awareness Month. Awareness of any disease is so important. Awareness brings attention which brings medical research and funding and hopefully will lead to more treatment options or even dare I say .. a CURE. I made a promise to myself that I would make my blog public knowledge on my personal… Continue reading To Share or Not to Share ..
I'm the type of person who truly considers over sharing a terrible trait. I've mentioned it in my past blog about social media, how it's so strange to me that we post so much of our real lives online and let strangers in on our daily routines, celebrations etc. yet won't even say hello to… Continue reading Why Did I Start this Blog?
I think about this often. What if this whole situation didn't happen to me and instead of being the patient, my loved one was the patient and I was caring for them. Not that I need much "caring" for. Maybe emotionally more than anything but lets be honest, I needed that before my diagnosis too… Continue reading I’m Glad It’s Me
A letter to my 20's: Dear Twentie's, Wow. Where do I even begin? I was so excited to finally be able to bear the "20 something" age. I counted down the days until I was 20, but admittedly, I counted down the days to 21 with much more excitement. I went out and made memories… Continue reading A Letter to My 20’s.
I am NOT, by any means, an outdoorsy person. In fact, I really resonate with this meme in particular:I do, however have a best friend who is outdoorsy. We often speak about how we are so opposite and that's how our friendship works. She tends to get me into situations that are out of my… Continue reading How Quickly We Forget
I used to be someone who NEEDED their cup of coffee every single morning. I wouldn't truly feel "awake" until I was about half way through my cup. If I ever didn't have a chance to make it myself in the morning or if I was running late and didn't have time to stop and… Continue reading Coffee: A Thing of the Past